+91 9840109977 | info@healingwingsfoundation.org
PATIENT ADVOCACY & RESEARCH

Advancing Rare Disease Care
in India

Through patient advocacy, research, early diagnosis and policy action.

Healing Wings Foundation works to strengthen the rare disease ecosystem in India by bringing together patients, healthcare professionals, researchers, institutions, government stakeholders and partners.

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Who We Are

Working Towards a Better Future for People Living with Rare Diseases

Rare diseases can present significant challenges in diagnosis, treatment, access and long-term care.

Healing Wings Foundation is committed to addressing these challenges through patient advocacy, research, early identification, policy engagement and collaborative initiatives.

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Hopeful child care support

We work with healthcare ecosystems to promote awareness and diagnostic access.

We actively build bridges across institutions to provide children and adults with rare conditions the attention, diagnosis, and long-term research support they deserve.

  • 12A | 80G | CSR Registered
  • Standard Patient Pathways
What We Do

Our Five Areas of Work

Our work focuses on key areas that can make a meaningful difference to people living with rare diseases.

Patient Advocacy

Supporting patients and families by promoting awareness, engagement and access to appropriate healthcare resources.

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Rare Disease Advocacy

Working with stakeholders to raise awareness and encourage policies and initiatives that address the needs of people living with rare diseases.

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Research & Innovation

Supporting research, innovation and new approaches that may contribute to earlier identification, better care and improved access.

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Early Diagnosis & Screening

Promoting initiatives focused on early identification, screening and strengthening diagnostic pathways for rare diseases.

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Collaboration

Building meaningful collaborations with government, healthcare institutions, researchers, patient communities and organisations in India and internationally.

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From Advocacy to Action

Our Impact

Our work brings together patient needs, healthcare expertise, research and policy engagement to generate lasting improvements in the Indian landscape.

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Government Submissions

Engaging with public institutions and policymakers on rare disease priorities.

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Initiatives Conducted

Supporting awareness and patient-focused advocacy programs.

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Research & Innovation Areas

Exploring clinical pathways and innovative diagnostic systems.

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collaborations Built

Working with clinical, research, and international organisations.

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Featured Initiative

Epidermolysis Bullosa Initiative

Healing Wings Foundation is working to advance awareness, patient advocacy, research collaboration and policy engagement for Epidermolysis Bullosa (EB) in India.

Our work includes patient advocacy, engagement with research organisations, representation to government stakeholders and efforts towards strengthening recognition of EB within the rare disease landscape.

Patient Advocacy
Research collaborations
Policy Engagement
Stronger Recognition
Explore Our EB Initiative
Delicate skin care representation
Research & Innovation

Driving Innovation for Rare Diseases

Healing Wings Foundation is exploring innovative approaches to address challenges in rare disease diagnosis and treatment.

  • Orphan drug repurposing: Accelerating delivery times and repurposing pre-approved compounds.
  • Rare disease research: Generating shared genomic profiles for Indian rare diagnostics.
  • Technology-enabled approaches: Implementing clinical databases for the earliest possible detection.
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Laboratory researcher
Global Connection

Change Happens Through Collaboration

Creating meaningful change in rare diseases requires active contribution from every sector of our healthcare network.

Government & Public Institutions
Research Organisations
Healthcare Institutions
Diagnostic Institutions
Patient Communities
Industry & Partners
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Insights & Action

News & Updates

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Government strategy session
MAY 2026

Engagement with Government Stakeholders on Rare Disease Priorities

Active coordination and strategy sharing built to secure vital resource frameworks for patient communities.

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Patient support guidelines
APRIL 2026

Patient Advocacy Programme for Epidermolysis Bullosa Patients

Direct care circles providing protective medical kits, guidance guides, and psychological care support paths.

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MARCH 2026

Advancing Research & Innovation for Rare Diseases

Leveraging integrated sequencing systems to significantly improve diagnostic and intervention speeds.

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Empower Communities

Be Part of the Change

Whether you are a patient, caregiver, healthcare professional, researcher, organisation or supporter, there are many ways to contribute to the rare disease ecosystem.

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Scan to Donate & Support

Your contribution helps us secure diagnostic & advocacy access kits.

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